Our Network

The POND network consists of a team of clinicians, scientists, engineers and other stakeholders from the public and private sector located across Ontario.

POND Network Co-Directors:

 

Evdokia Anagnostou, MD, Holland Bloorview Kids Rehabilitation Hospital

 

Jason Lerch, PhD, The Hospital for Sick Children

 

POND Network Executive Committee:

 

  • Stephen Scherer, PhD, The Hospital for Sick Children
  • Peter Szatmari, MD, The Hospital for Sick Children
  • Jennifer Crosbie, PhD, The Hospital for Sick Children
  • Paul Arnold, MD, University of Calgary
  • Stelios Georgiades, PhD, McMaster University
  • Muhammad Ayub, MBBS, MRCPsych, MSc., MD, Queen’s University
  • Elizabeth Kelley, PhD, Queen’s University
  • Robert Nicolson, MD, Western University
  • Russell Schachar, MD, The Hospital for Sick Children

 

Participating Institutions:

 

Toronto, Ontario: University of Toronto, Holland Bloorview Kids Rehabilitation Hospital, Hospital for Sick Children

 

Hamilton, Ontario: McMaster University, McMaster  Children’s Hospital, St Joseph’s Hospital

 

London, Ontario: Western University, Children’s Hospital at London Health Sciences Centre

 

Kingston, Ontario: Queen’s University, Ongwanada Resource Center, Hotel Dieu Hospital

 

 

Community Partner Organizations:

 

Autism Speaks, Autism Ontario, Circle 21, Community Living Toronto, Ontario Rett Syndrome Association, Totally ADD, and Sick Kids Down Syndrome Clinic. These groups have representatives on our Patient Advisory Committee, which also has individuals with neurodevelopmental disorders, family members and caregivers. Learn more about this committee and how they partner with us in our research below.

 

 

Patient Advisory Committee

 

POND’s Patient Advisory Committee is a group of people with personal experience of the clinical and practical issues facing those with neurodevelopmental disorders, their families, and the people who provide their care. They provide input and perspectives that are participant-centred and maintain focus on participants and their families, ensuring the POND initiatives and outcomes are participant-driven. The committee is also an important POND partner in public and community engagement, as well as ensuring our research and activities are communicated effectively to individuals with neurodevelopmental disorders, their families, and other individuals who can apply this knowledge to improve care and long-term outcomes.

 

Patient Advisory Committee Members

Current Members: 

  • Evdokia Anagnostou, POND Co-Director, Holland Bloorview
  • Esther Rhee, National Program Director, Autism Speaks Canada
  • Alana Iaboni, POND Project Manager, Holland Bloorview
  • Connie Putterman, ASD activist/parent
  • Julia Biondi, ADHD activist/parent
  • Kevin Morton, Ontario Rett Syndrome Association
  • Claudine Evangelista
  • Anthony Evangelista
  • Margret Spoelstra, Autism Ontario
  • Shannon Pascoe
  • Sangeeta Staley, CDKL5 Canada 

Past Members:

Contact Information

To learn more about the Patient Advisory Committee or to inquire about how you might get involved, please contact Windermere Jarvis (wjarvis@hollandbloorview.ca)