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More than 300,000 children and youth in Ontario have one or more neurodevelopment disorders.

At POND, we are here to address the clear and urgent need for new and better targeted therapies in an effort to improve the long-term outcomes for children with ASD, ADHD, OCD, ID, Rett Syndrome, Tourette Syndrome, Fragile X Syndrome, and Down Syndrome.

 

About POND

POND Studies

Knowledge Translation

 

News

Patients Set Research Priorities in Neurodevelopmental Disorders – A Canadian First

Read about it here:http://markets.businessinsider.com/news/stocks/Patients-Set-Research-Priorities-for-Neurodevelopmental-Disorders;-A-Canadian-First-Facilitated-by-Ontario-Brain-Institute-507449

World’s largest autism genome database shines new light on many ‘autisms’

Read about it at: https://www.autismspeaks.org/science/science-news/world%E2%80%99s-largest-autism-genome-database-shines-new-light-many-%E2%80%98autisms%E2%80%99

Learn to Recognize Autism Symptoms in Girls

Dr. Meng-Chuan Lai’s research is featured in the Toronto Star. Read about it here:
http:www.thestar.com/life/health_wellness/2017/08/21/learn-to-recognize-autism-symptoms-in-girls.html

CAMH Study of Use of Antipsychotics in People with Developmental Disabilities

Read about it at: https://www.thestar.com/news/gta/2017/08/23/study-questions-why-thousands-with-developmental-disabilities-are-prescribed-antipsychotics.html

Research in Clear Language

One of the main challenges of any large research initiative is not only to produce new, high quality knowledge but to also make sure that this knowledge is shared with the right people at the right time and in the right format. Basic information about the latest research in neurodevelopmental disorders is being “translated” so the knowledge can be shared between the producers (researchers), and the users (parents, teachers, clinicians, and policy makers).

Choose a category below to view the latest.

Attention Deficit Hyperactivity Disorder (ADHD)
Autism Spectrum Disorder (ASD)
Down Syndrome
Family Well-Being
Fragile X Syndrome
Intellectual Disability (ID)
Obsessive Compulsive Disorder (OCD)
Rett Syndrome
Tourette Syndrome

 

Patient Advisory Committee (PAC)

A major POND initiative is the Patient Advisory Committee, a group of people with personal experience of the clinical and practical issues facing those with NDs, their families, and the people who provide their care. This group of volunteers serves as a sounding board for our ideas and activities and acts as advisors who recommend topics and content for this website. They represent the diverse opinions and needs of their communities and what ultimately defines them is their commitment to people with NDs.

Read about our Patient Advisory Committee

 

POND Ripples

Sometimes when you do something you immediately see a reaction or consequence. Often, though, you can’t foresee how that one action sets in motion unseen consequences. Like tossing a pebble in a pond, it produces a ripple effect.

In the case of the POND Network website, if you read something here that interests you and you tell someone else about it, you could be creating a ripple. You never know how a bit of knowledge learned from our summaries might make a difference in a child’s life.

So, send friends and colleagues a link to our site, or email one of our PDFs about research results in neurodevelopmental disorders. You might just be that pebble….

Read about our Research Ripples

 

Conferences

As part of our Knowledge Translation & Exchange System, we host conferences to help ensure that results of the POND Network studies reach our scientific community. The conferences let scientists talk to each other, so they can see how their research studies might intersect. They have opportunities to forge and strengthen collaborations and to teach and learn as colleagues, instead of competitors.

At our parent conferences we give feedback about POND Network research and let parents ask questions to the researchers directly. Parents can make known the issues of everyday life with a child with a neurodevelopmental disorder. Parents gain a greater understanding of the research process, and can suggest issues that could be addressed by POND Network research.

POND Parent Information Day 2014

POND Science Day 2014

POND Parent Information Day 2015

2015 POND Research Interviews

POND Parent Information Day 2016

 

Videos

Welcome to our new video section

Click here to see our growing collection of videos.

 

To view videos from our Parent Information Days, go to:

Parent Day 2014

POND Parent Information Day 2015

POND Parent Information Day 2016


Contact Us
POND Network: Alana Iaboni
Holland Bloorview Kids Rehabilitation Hospital: Susan Day Fragiadakis
The Hospital for Sick Children: Kira Sklar
Lawson Health Research Institute/Western University: Ahsan Ahmad
McMaster University: Mike Chalupka
Queen’s University: - Melissa Hudson
Holland Bloorview Kids Rehabilitation Hospital: Ontario Clinical Trials Network - Lisa Genore
Sponsors

The POND Network is an Integrated Discovery Program carried out in partnership with the Ontario Brain Institute.